Citizens at the Centre: Deliberative Participation in Healthcare DecisionsInvolving citizens in policy decision-making processes - deliberative democracy - has been a central goal of the Labour government since it came to power in 1997. But what happens when members of the public are drawn into unfamiliar debate, with unfamiliar others, in the unfamiliar world of policy making at national level? This book sets out to understand the contribution that citizens can realistically be expected to make. Drawing on the lessons from an ethnographic study of a public involvement initiative in the health service - the Citizens Council of NICE (National Institute for Clinical Excellence) - the book explores the practical realities behind the much-quoted faith in 'deliberation' that underpins so many models of public involvement and presents the analysis of sixty four hours of video and audiotape capturing a warts-and-all picture of deliberation in action. It sets deliberative participatory initiatives within a broad inter-disciplinary context and challenges politicians, policy-makers and academics to develop more realistic approaches to democratic innovation. Citizens at the centre will be of interest to academics and students in social policy, sociology, politics, health, social care, economics, and public administration and management. It will also be valuable to anyone involved in the policy making process, not only in the UK, but also in Europe, the USA and other countries where deliberative democracy is being implemented or discussed. |
Contents
towards an understanding of practice | 37 |
three | 65 |
four | 73 |
the first Citizens Council meeting | 85 |
Better by design? Subsequent Citizens Councils | 109 |
Power discursive styles and identities | 137 |
seven | 169 |
eight | 193 |
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Common terms and phrases
ageism analysis appraisal committee argue argument asked chair challenge Chapter citizen participation Citizens Council meeting Citizens Council members Clinical Excellence clinical need community of practice context Council of NICE councillors debate decisions deliberative assembly deliberative democracy deliberative ideal deliberative polling dialogue dilemma discourse discourse analysis discursive psychology discussion document emerge engage ethnographic evaluation example experience expertise space explore Extract facilitators guidelines Health Development Agency host organisation inaudible individual Institute Institute's interaction interviews involved issues juries King's Fund London NICE Citizens Council participatory particular Partners Council patient plenary sessions political political correctness position potential POWER Inquiry project manager recommendations relevant response review session small group social practice social value judgements stakeholders steering committee theory third meeting topic views Vision 21 West Midlands Witness presentation www.nice.org.uk Yeah